Medicaid Reform 101


The NC Stakeholder Engagement Group (NC SEG) was a cross-disability advocacy initiative focusing on shaping the long-term support and service systems through meaningful engagement and dialogue with policymakers. It was generously funded by the North Carolina Council on Developmental Disabilities (NCCDD) for three years.

Since the November election, the political landscape has changed rapidly and expansively, and we anticipate these changes will have a substantial impact on the long-term supports and service systems for people with disabilities. It is vital that the authentic, constructive voice of consumers and family members be at the table as the system evolves. The funding from NCCDD ended in November 2016. The NC SEG is currently looking for funding to continue its advocacy efforts. While we seek funding from a variety of sources, the formal activities of the group have been suspended. This page will be updated by Community Bridges Consulting Group pro bono until funding is secured.

If you know of a funding source or possibility, please e-mail Thank you!

On March 1, the NC Department of Health and Human Services provided the Legislative Oversight Committee on Medicaid and Health Choice an update on the draft 1115 medicaid waiver. This Waiver will change the current Medicaid physical healthcare fee-for-service system to a managed care program.

The NC Stakeholder Engagement Group’s goal is to keep consumers and family members of mental health, developmental disabilities, and substance use services informed and empower them to effectively help to shape the system through advocacy during the policymaking process around Medicaid Reform.

Learn More About Medicaid Reform

Policy Chats

To help prepare consumers and family members to participate in the Medicaid Reform conversation in an informed and constructive manner, the NC SEG is conducting a series of interviews with policy experts, administrators, and elected officials.

Dr. Peggy Terhune
Executive Director/CEO

Leza Wainwright
Chief Executive Officer
Trillium Health Resources

Mary Hooper
Executive Director
North Carolina Council of Community Programs

Dave Richard
Deputy Secretary for Medical Assistance
Department of Health & Human Services

Policy Chat with Dr. Patricia Porter
Senior Policy Advisor to the NC General Assembly


NC SEG Presentations

Useful Links

Straight from the Source

Read the Medicaid Reform Waiver Application (Section 1115 Demonstration), Medicaid Reform Report, learn about proposed service regions, and provide public input directly on DHHS’ Medicaid Reform website.

Make Your Voice Heard!

The Department of Health and Human Services is formally accepting input on the draft plan of the 1115 Waiver until April 18th. You can provide input by submitting public comment or attending and speaking at a public hearing.

Join a Public Hearing

  • March 30, 2016
    McKimmon Center
    Room 6
    1101 Gorman Street
    Raleigh, NC 27606
    6 p.m. – 8 p.m.
    March 31, 2016
    Union County Dept. of Social Services
    1212 W. Roosevelt Boulevard
    Monroe, NC 28110
    2 p.m. – 4 p.m.
  • March 31, 2016
    CPCC Merancas Campus
    Auditorium11930 Verhoeff Drive
    Huntersville, NC 28078
    6:30 p.m. – 8:30 p.m.
    April 6, 2016
    Holiday Inn Express
    1943 Blowing Rock Road
    Boone, NC 28607
    12 p.m. – 2 p.m.
  • April 6, 2016
    Asheville-Buncombe Tech Community College
    Mission Health / A-B Tech Conference Center
    340 Victoria Road
    Asheville, NC 2880
    16:30 p.m. – 8:30 p.m.
    April 7, 2016
    Guilford County Health & Human Services
    1203 Maple Street
    Greensboro, NC 27405
    6:30 p.m. – 8:30 p.m.
  • April 8, 2016
    Forsyth County Department of Public Health
    Meeting Room 1 & 2799 North Highland Avenue
    Winston-Salem, NC 27102
    2 p.m. – 4 p.m.
    April 13, 2016
    UNC Wilmington
    McNeill Hall Lecture Hall
    601 S. College Road
    Wilmington NC 28403
    6 p.m. – 8 p.m.
  • April 16, 2016
    College of Albemarle
    AE 2081208 N. Road Street
    Elizabeth City, NC 27909
    10 a.m. – 12 p.m.
    April 18, 2016
    Moore Hall Auditorium1 University Drive
    Pembroke, NC 28372-1510
    3:30 p.m. – 5:30 p.m.